• 26th May 2020

NEW interactive online patient tool for people with rare diseases to better understand their risk of Covid-19

Hot off the press - following on from our news article last week, the patient interactive tool that allows people with rare diseases to better understand their risk of Covid19 has now been released.

It is the result of a collaboration between the British Society for Genetic Medicine, the Clinical Genetics Society and Aimes (a healthcare IT company). The tool is based on advice from major specialist colleges in the UK and can be accessed here.

https://is.gd/covid19_gosh

 The purpose of the tool is to open a conversation with the patient’s primary physician –it does not replace individualised advice. The BSGM has sent information about this tool to their members and is asking members to disseminate this information widely in their departments and to share this link with other colleagues who may find this tool useful. Please direct any questions or feedback to

Lara.menzies@gosh.nhs.uk or Elizabeth.forsythe@gosh.nhs.uk