Genetics Healthcare Research

Genetics Healthcare Research

The National Institute for Health Research (NIHR) was set up in 2006 to create a world-class health research system within the NHS.  The NIHR Clinical Research Network provides the infrastructure to support clinical research studies.  Central to this system is the UK Clinical Research Network Study Portfolio.  Genetics is an active specialty and currently has 139 studies open and recruiting across the UK.

To benefit from this support a study must meet specific eligibility criteria to be adopted onto the Portfolio.  This database then captures study recruitment data which is used to performance manage trials and allocate NIHR research resources.  The NIHR Clinical Research Network is associated with support for clinical trials, however it is also a useful resource for non-medical qualitative research studying the social and ethical aspects of genetics.

The infrastructure provided by the NIHR Clinical Research Network consists of:

  • assistance with the Research and Development (R&D) approvals process
  • research nurses to consent patients into studies and perform study related procedures
  • support for services such as pharmacy, imaging and pathology
  • access to training opportunities

The Genetics Specialty is one of 30 specialties within the NIHR Clinical Research Network (CRN) which provides researchers with the practical support they need to make clinical studies happen in the NHS. The CRN is made up of 15 Local Clinical Research Networks which facilitate these services at a regional level.  For further information contact your Local Clinical Research Network.